Palliative Perspectives - palliAGED

Usability evaluation and online palliative care information resources

A guest blog post by Amanda Adams, PhD Candidate, College of Nursing and Health Sciences, Flinders University

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The internet has provided a mechanism to make palliative care information freely accessible. However, the complexity of palliative care and situational stresses can influence a person’s ability to easily find, navigate and understand online information. It is for this reason that many developers of websites providing palliative care information conduct a usability evaluation during the development process. Amanda Adams discusses her research into evaluation of usability and accessibility during the development stage of an online resource or toolkit and whether this improves access and value.

Nurse Practitioners (NPs) can help integrate the new Aged Care Quality Standards

A guest blog post by Peter Jenkin, Nurse Practitioner (Palliative Care), Resthaven

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The new Aged Care Quality Standards have now come into effect and all organisations providing aged care services in Australia will need to demonstrate how they comply with the new standards. Peter Jenkin from Resthaven discusses the role of Nurse Practitioners in helping aged care organisations integrate the new standards into practice, and thus demonstrate compliance.

Knowledge translation: Helping to improve outcomes in palliative care

A guest blog post by Dr Barbara Daveson, Manager and Senior Research Fellow, PCOC (Palliative Care Outcomes Collaboration)

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Translating research into practice and policy is an international priority. However, despite our best efforts, research findings often fail to be translated into practice. Translating knowledge into clinical care can also take a very long time, which when it comes to palliative care may be too late. So what can help us translate knowledge into practice more quickly? Barbara Daveson from PCOC (Palliative Care Outcomes Collaboration) discusses knowledge translation and how it can help to improve outcomes in palliative care.

Palliative care central to person-centred aged care

A blog post from Professor Jennifer Tieman, Director, Matthew Flinders Fellow, Research Centre in Palliative Care, Death and Dying

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What is the nature of person-centred care in the context of palliative care and aged care? Following the Aged Care Royal Commission hearing Professor Jennifer Tieman explores some of the issues involved in ensuring that there is holistic care for older Australians receiving aged care services coming to the end of their life.

Knowing me, knowing you… Reflecting on intimacy and sexuality at the end of life

A guest blog post by Nigel McGothigan, Director of Aged Care and Health Care Education, Australian Capital College

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No matter their diverse characteristics, life experiences, cultural background, gender, sexuality, sexual orientation or financial situation, every Australian has the right to have to their individual needs and expectations met without discrimination. For many, there remains a difficulty in accepting that older adults or those who are at end of life want intimacy and have sexuality needs. Nigel McGothigan, Director of Aged Care and Health Care Education from Australian Capital College discusses the tools put in place to support the aged care workforce to understand and be agile in addressing expectations and the complex and diverse care needs of the older person.

The ELDAC Residential Aged Care Toolkit: Assisting the transition to the Aged Care Quality Standards

A guest blog by Professor Deborah Parker, Professor of Aged Care (Dementia) and Dr Holly Mack, Research Fellow, Faculty of Health, University of Technology Sydney

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Providing end-of-life care to residents with advanced life-limiting illnesses can be challenging for clinicians and health care workers. In this blog, Professor Deborah Parker and Dr Holly Mack from the University of Technology Sydney discuss how the ELDAC Residential Aged Care toolkit can assist you and your organisation in meeting the new Aged Care Quality Standards.

End-of-life care needs of adults with long-standing physical disability

A guest blog post by Dr Ruth Walker, Head of Teaching Section (Applied Gerontology) and Senior Lecturer (Disability and Community Inclusion), College of Nursing and Health Sciences, Flinders University

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Due to advances in medicine, people with physical disabilities are living longer. While end-of-life care should be readily accessible for this group, the care needs of people with significant physical disabilities arguably adds an additional layer of complexity to such care. Dr Ruth Walker from Flinders University discusses end-of-life care needs for adults with long-standing physical disability and the new research she is involved in to explore the specific needs of people with physical disabilities who are at the end-of-life, as well as the needs of their families and the support staff who help care for them.

The Advance Project – supporting a team approach to advance care planning and palliative care in everyday general practice

A guest blog post by Professor Josephine Clayton, Senior Staff Specialist Physician in Palliative Medicine, HammondCare and Professor of Palliative Care, University of Sydney and Associate Professor Joel Rhee, General Practitioner and Associate Professor of General Practice, HammondCare Centre for Positive Ageing and Care, University of Wollongong

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General practices provide ongoing care for a large number of patients with chronic, progressive, and eventually fatal illnesses, and so have an essential role in providing palliative care to patients and their families. Professor Josephine Clayton, Senior Staff Specialist Physician in Palliative Medicine and Associate Professor Joel Rhee, General Practitioner, discusses the Advance Project and how it aims to support general practices with the tools to identify people early who might need a palliative approach to their care and enables general practice teams to thoroughly assess the persons’ symptoms, concerns and priorities as well as the needs of their carers.

Helping older Australians access high-quality primary healthcare

A guest blog post by Alison Verhoeven, Chief Executive, Australian Healthcare and Hospitals Association (AHHA)

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Older people entering residential aged care are often shocked to find their GP is no longer able to continue providing them with the healthcare they have been used to. Alison Verhoeven, CEO of the Australian Healthcare and Hospitals Association, discusses how the End of Life Directions for Aged Care project can support primary care professionals to provide consistently high-quality care to older Australians.

Is your palliative care service meeting the National Palliative Care Standards?

A guest blog post by Kate Reed-Cox, Palliative Care Nurse Practitioner (MN) and National Clinical Advisor, Palliative Care Australia

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Palliative Care Australia (PCA) is the peak body for palliative care representing all those who work towards high quality palliative care for all Australians. Working with the government, it sets the standard by which services can be assessed. Kate Reed-Cox from PCA discusses how the new Palliative Care Self Assessment program provides services with a secure online portal to self-assess against the National Palliative Care Standards (5th ed.), and the National Safety and Quality Health Service Standards (2nd ed.), resulting in a quality improvement action plan.