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PCACE Project: Developing and maintaining guidance for palliative care in aged care

A guest blog post from Dr Jennifer Tieman, CareSearch Director, Associate Professor, Discipline Palliative and Supportive Services

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The release of the Guidelines for a Palliative Approach in Residential Aged Care (APRAC) and the Guidelines for a Palliative Approach for Aged Care in the Community Setting (COMPAC) were a significant advance in recognising and responding to changing population demography in Australia.  They aimed to support the provision of palliative care for older people living in the community or in residential aged care by identifying and evaluating the evidence for care to promote quality of life for older Australians who have a life-limiting illness or who are becoming progressively frailer during old age. The two sets of guidelines were important landmarks nationally and internationally. 
 

‘What is needed to improve care planning for people living with dementia?’

A guest blog post from Tim Luckett PhD, Senior Research Fellow, University of Technology Sydney and Ingrid Duff, Research Assistant, Centre for Cardiovascular and Chronic Care

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During National Palliative Care Week, the University of Technology Sydney (UTS) hosted a forum on dementia care planning facilitated by the Director of The Centre for Cardiovascular and Chronic Care, Faculty of Health, Professor Jane Phillips. Imelda Gilmore, an Alzheimer’s Australia NSW Dementia Advocate and wife of a person with dementia, opened the forum by highlighting the importance of “getting the word out to have conversations about end of life early on”. A recurring theme at the forum was the need for care decisions to be person-centred and focused on what the person with dementia would have wanted were they able to speak for themselves, rather than the wishes of surrogate decision-makers. Lynn Chenoweth (Professor of Nursing at the Centre for Healthy Brain Ageing, The University of New South Wales) defined person-centredness as respecting the person with dementia’s “values, beliefs, history, likes and dislikes … all of the things that make them unique”.

palliAGEDnurse app: Putting information in nurses’ hands

A Guest Blog Post from Dr Jennifer Tieman, CareSearch Director, Associate Professor, Discipline Palliative and Supportive Services

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There is no doubt that nurses are fundamental to health care. There are over 350,000 nurses currently practising in Australia. They are the largest single health profession in Australia. But more importantly, they are most often the face of care to the person needing care. And this is particularly important to remember when thinking about the care needs of an older person who may be the last stage of their life.

Many older people spend some or all of the last year of their life at home. Some will move to residential aged care or will already be in an aged care facility. Others will live with families or friends. Some may spend time in a hospital. Nearly all will be involved with a GP and with their Practice Nurses. So not only are nurses critical in enabling good care for older Australians coming to the end of their life, they will be providing this care in many different settings.
 

Have you ever wondered why it's difficult to find a useful and relevant palliative care app when you need one?

A guest blog post from Amanda Adams, Project Officer, GATI Project, Decision Assist program and CareSearch Research Assistant

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In 2013, Canalys (1) estimated there were over 1,600,000 apps available in the two largest online app stores,  iTunes and Google Play, and the number of platform-based, service carrier or manufacturer-operated online stores has increased to over 70 worldwide in the last two years (2). With over 1.2 billion people now accessing mobile applications (3), the role of the app has become multidimensional, with users expecting to discover an app to enhance every part of their life, for both work and play. For healthcare professionals (HCPs) working in palliative care, searching, evaluating, identifying, and downloading relevant apps from the proverbial sea of applications is a time-consuming pastime which often yields little to no results.

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