What it is: Here we refer to people with an intellectual or developmental disability or limited communication ability.
Why it matters: An increasing number of older people with an intellectual disability have co-morbid conditions or advanced illnesses requiring palliative care.
Language and communication skills vary between people with an intellectual disability hence care needs to be taken to understand each other as much as possible.
What I need to know: In some cases, people with an intellectual disability may be admitted to residential aged care because of:
Older people with an intellectual disability:
People with Down syndrome are at risk of developing Alzheimer’s disease at a younger age, hypothyroidism, loss of vision, loss of hearing, arthritis, instability of the neck joint leading to pain and spinal cord damage and in women, early menopause.
Always give the person your full and complete attention and make sure you introduce yourself and let the person know why you are there. Do not talk over the person as though they are not there.
Look at the person and not the disability.
Establish communication needs and preferences for the person. Ensure a communication assessment has been completed. A speech pathologist may be able to assist.
Give clear and simple information. Use language that fits with the person’s communication level.
Use pictures and diagrams to clarify explanations if this is an appropriate way to communicate with the person.
Tools that may be useful include:
Disability Distress Assessment Tool (DisDat)
Talking End of Life with people with disability (TEL) - includes education modules and information on person-centred thinking tools to establish a better understanding of the person’s needs, likes, relationships and mood signals.
What could I do to better understand a person with intellectual disability?
Have I ever used childish language to speak with older people with intellectual disability?
See related palliAGED Practice Tip Sheets:
People with specific needs
Person-centred care
Talking about dying
CareSearch is funded by the Australian Government Department of Health, Disability and Ageing. Updated May 2025
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