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Practice Tip Sheets for Careworkers Advance Care Planning Advanced Dementia Advanced Dementia Behavioural Changes After Death Choices Aged Care Access and Assessment Anxiety Cachexia Sarcopenia and Anorexia Case Conferences Complementary Therapies Constipation Continuity of Care Culturally Responsive Care Communication Distress at the End of Life Dysphagia Dyspnoea End of Life Care Pathways Eye Care Faecal Incontinence First Australians Communication Frailty Grief and Loss among Older People Families and Residents Grief and Loss among Staff Myths about Morphine Nutrition and Hydration Opioid Analgesics Oral Care Pain Management Palliative Care People with Intellectual Disability Communication People with Specific Needs Person Centred Care Psychosocial Assessment and Support Quality of Life Recognising Deterioration Respiratory Secretions Self Care Signs of Imminent Death Skin and Wound Care Spiritual Care Supporting Families Talking about Dying Talking within the Aged Care Team Next Steps for CareworkersPractice Tip Sheets for Nurses Advance Care Planning Advanced Dementia Advanced Dementia Behavioural Changes After Death Choices Aged Care Access and Assessment Anxiety Cachexia Sarcopenia and Anorexia Case Conferences Complementary Therapies Constipation Continuity of Care Culturally Responsive Care Communication Distress at the End of Life Dysphagia Dyspnoea End of Life Care Pathways Eye Care Faecal Incontinence First Australians Communication Frailty Grief and Loss among Older People and Families Grief and Loss among Staff Inclusive Communication for Older People with Disability Myths about Morphine Nutrition and Hydration Opioid Analgesics Oral Care Pain Management Palliative Care People with Specific Needs Person Centred Care Psychosocial Assessment and Support Quality of Life Recognising Deterioration Respiratory Secretions Self Care Signs of Imminent Death Skin and Wound Care Spiritual Care Supporting Families Talking about Dying Talking within the Aged Care Team Next Steps for NursesPalliAGED Introduction Modules Introduction Modules ManualTraining and Education palliAGED ProductsPractice Tip Sheets for Careworkers Practice Tip Sheets for NursesDeveloping the Workforce Supporting Change Service Solutions Download Resources Order Free ResourcesAdvance Care Planning Advanced Dementia Advanced Dementia Behavioural Changes After Death Choices Aged Care Access and Assessment Anxiety Cachexia Sarcopenia and Anorexia Case Conferences Complementary Therapies Constipation Continuity of Care Culturally Responsive Care Communication Distress at the End of Life Dysphagia Dyspnoea End of Life Care Pathways Eye Care Faecal Incontinence First Australians Communication Frailty Grief and Loss among Older People and Families Grief and Loss among Staff Inclusive Communication for Older People with Disability Myths about Morphine Nutrition and Hydration Opioid Analgesics Oral Care Pain Management Palliative Care People with Specific Needs Person Centred Care Psychosocial Assessment and Support Quality of Life Recognising Deterioration Respiratory Secretions Self Care Signs of Imminent Death Skin and Wound Care Spiritual Care Supporting Families Talking about Dying Talking within the Aged Care Team Next Steps for NursesPalliAGED Introduction Modules Forms Resources for Families Aged Care Journeys in Palliative Care PalliAGEDnurse App Education Videos for Aged Care Workers
Tips for Nurses:
Supporting Families

What it is: Family can still be unprepared for decline and death even when the older person is becoming frailer and less active. They need support to understand what is happening (including what happens as a person is dying), share experiences, make care decisions, and cope with loss.
Why it matters: Supporting carers and family members is part of palliative care. It acknowledges the older person’s life and connection with family as being an important part of who they are. It recognises the physical and emotional support and assistance that family members provide.
What I need to know: Carers often look to health professionals to help them understand the disease, symptom management, and end-of-life care planning. Frequent, short conversations with small amounts of information may be helpful.
Family members can also experience many emotional issues that they need your help with including:
- guilt and/or relief if they can no longer manage care at home and an older person needs to move into residential aged care
- sadness and distress at the person’s deteriorating condition
- anticipatory grief in response to impending death
- grief due to death of a loved one, an end to their role as carer, and changes to their daily routine
- distress from a sense that:
- the person’s dignity and identity are not being maintained
- they are not seen as a partner in providing care
- carers are ‘cold’ and ‘clinical’
- not enough care is being provided.
It can help if you welcome family as partners in providing care and acknowledge their understanding of the older person.
Actions
Reassure family that you care:
- Be available to talk and actively listen to the older person and their family.
- Establish a trusting relationship with the older person and treat them with respect.
- Support the older person’s dignity by attending to essential and spiritual care needs. This includes attention to physical appearance and involving them in making daily choices.
Identify the substitute decision-maker and the key contact. Establish regular communication with them and notify them of changes in health or to care.
Frequently provide small ‘chunks’ of clear and honest information about the person’s condition and any deterioration. Be sensitive and show empathy, but do not give false hope.
In family discussions, check what they have understood. Refer to previous discussions and confirm continuing appropriateness. Invite family to actively participate in family meetings and case conferences. Ask for their perspective about what they are seeing before offering your own.
Acknowledge:
- that grief starts before death
- the cultural needs of the person and family.
Tools
Tools that may be useful include:
Carer Support Needs Assessment Tool (CSNAT)
Carers’ Alert Thermometer (CAT)
Needs Assessment Tool for Carers of People with a Chronic Condition (NAT-CC) (381kb pdf)
Visit CarerHelp for resources for carers.
Communicating with families – a training video from the Education on the Run series.
My reflections:
Would my family members be happy to receive the level of care I provide to the older people I care for?
What do I do to support relatives of people in my care? What guides my choices?
See related palliAGED Practice Tip Sheets:
Grief and loss: Older people and families
For references and the latest version of all the Tip Sheets visit
Practice Tip sheets for nurses
CareSearch is funded by the Australian Government Department of Health, Disability and Ageing.
Updated May 2025
Page updated 21 July 2026