Projects and Resources

There are many projects that are underway, or that have been recently completed, developing resources that support palliative care and end-of-life care for older Australians.

Palliative Care - Aged Care Resources

These options link to current and active resources relevant to palliative care and aged care. You can find information for your own use or share it with your colleagues.

CareSearch RAC Hub, led by CareSearch, Flinders University (SA), funded by Department of Health
The RAC Hub consolidates the relevant evidence and facilitates access to practical resources and relevant literature for specific professional groups. The RAC Hub contains discrete sets of content and resources designed to meet the information needs of a particular group or to accumulate the content base around a particular issue or care. These are organised to help the professionals in this area to easily and quickly find context relevant content.

Framework of Palliative Care for Community-Based Aged Care (77kb pdf)
Developed for GPs by ANZSPM through the Decision Assist consortium.

PA Toolkit, joint initiative of the University of Queensland and Brisbane South Palliative Care Collaborative (QLD), funded by Department of Health
The PA Toolkit (Palliative Approach Toolkit for Residential Aged Care Facilities) is a set of clinical, educational and management resources designed to guide and support RACFs to implement a comprehensive, evidence-based, person-centred and sustainable approach to palliative care for appropriate RACF residents.

palliAGEDgp, and palliAGEDnurse, led by CareSearch funded by Department of Health
These apps provide information for a GPs and nurses respectively to manage and care for patients in the last twelve months of life and in the final stages of their life.

PEPA (Program of Experience in the Palliative Approach) Aged, including Reverse PEPA, led by Queensland University of Technology (QLD), funded by Department of Health
System for aged care workers to access clinical workforce placements (with financial support) of up to five days with a specialist palliative care service within a metropolitan or larger provincial service. Reverse PEPA placements are being piloted in some states whereby a specialist palliative care staff member travels to the applicant’s place of employment to facilitate learning through tailored support or where in-service training can be delivered to multiple staff members.

Facilitated case conferencing for people with dementia
This web resource aims to improve case conference uptake, relevance and quality by coordination, facilitation and communication (termed facilitated case conferencing).

Palliative Care Only Resources

These options link to resources which contain information relative to palliative care but are not specific to aged care.

The National Palliative Care Standards
The revised 5th edition National Palliative Care Standards (NPCS) outlines nine standards articulating and promoting a vision for compassionate and appropriate palliative care. The Standards recognise the importance of care that is person-centred and age-appropriate and are aimed at supporting services to ensure that the people have access to the highest quality of care as they approach and reach the end of life.

Palliative Care Service Development Guidelines 
The guidelines outline the range of palliative care services that should be available to people living with a life-limiting illness, their families and carer sand the workforce and system capabilities required to deliver an effective network of palliative care services using a population-based and geographic approach to service planning.

Advance Toolkit; national consortium (Hammond Care (NSW), CareSearch (SA), University of Sydney (NSW), University of Queensland (QLD), University of Technology Sydney (NSW), University of Wollongong (NSW), Austin Health (VIC));  funded by Department of Health 
A free toolkit of screening and assessment tools and a training package, specifically designed to support GPs, nurses and practice managers in Australian general practices to initiate advance care planning (ACP) and palliative care in everyday general practice.

CareSearch, led by CareSearch, Flinders University (SA), funded by Department of Health
CareSearch is an online resource designed to help those needing relevant and trustworthy information and resources about palliative care. There are sections (information hubs) designed specifically for patients and families, GPs, nurses, and residential aged care. All material in the website has been checked for quality by Australian health professionals. As a web-based resource, the CareSearch materials are there when they are needed. Anyone with access to the internet can use the site. The CareSearch website is free to use.

End of life Law in Australia, led by Australian Centre for Health Law Research, Queensland University of Technology (QLD), funded by ARC and NHMRC grants and international funding
A program of research in a health law research centre which provides accurate, practical and relevant information to assist in the navigation of legal, ethical and policy issues in death, dying and decision-making including withholding and withdrawing life-sustaining medical treatment; provision of futile treatment at the end of life; advance care planning; palliative care; euthanasia; and coronial systems and regulation.

National Palliative Care Service Directory, led by Palliative Care Australia (PCA)
National Palliative Care Service Directory, maintained by Palliative Care Australia (PCA), provides information about specialist palliative care service providers, state or territory palliative care organisations and community support agencies.

Therapeutic Guidelines: Palliative Care (v4), led and funded by Therapeutic Guidelines
This publication provides evidence-based guidelines for symptom management and related clinical issues in the provision of palliative care. Target audience: Health professionals involved in the delivery of palliative care (particularly those in clinical roles).

Aged Care Only Resources

These options link to resources relevant  to aged care but not specific to palliative care

Advance care planning in aged care: A guide to support implementation in community and residential settings (2.38MB pdf)
A guide to provide information to assist aged care providers, particularly managers and senior staff, in implementing advance care planning, Advance care planning in aged care: A guide to support implementation in community and residential settings, was developed by Advance Care Planning Australia in partnership with the National Ageing Research Institute (NARI).

Aged Care Complaints Commissioner, an Australian Government Department
The Aged Care Complaints Commissioner provides information for service providers and service users  to understand their options to provide feedback, raise a concern or make a complaint within the aged care service  as well as information about best practice of handling of complaints and the issues arising from such complaints

My Aged Care, an Australian Government resource
My Aged Care is a website and a contact centre which hosts and communicates information about aged care services; some resources are available in multiple languages (18 other than English).

National Guidelines for Spiritual Care in Aged Care Project - including Implementation Tools, led by Meaningful Ageing Australia (formerly PASCOP), funded by Department of Social Services
These Guidelines are designed specifically for offering spiritual care and support to older people living in residential aged care, or receiving care and support through home care packages. The Guidelines may also have relevance in care contexts such as independent living, Commonwealth home support program, transitional care, palliative care, multi-purpose services and flexible care programs.

Professional Education to Aged Care (PEAC) program, led and funded by beyondblue
Professional Education to Aged Care (PEAC) is an e-learning program for a variety of different staff working in both residential or community settings, which aims to improve the detection and management of anxiety and depression in residential and community aged care settings. The online learning modules (up to seven) are delivered according to the role and setting of the registrant.

Silver Rainbow, led by National LGBTI Health Alliance, funded by Department of Health
Silver Rainbow educates and informs service providers, policy makers, government, communities and LGBTI peoples on inclusive practice and how this can be delivered in the Australian ageing and aged care sector. The initiative includes two key projects: LGBTI Ageing and Aged Care Strategy and LGBTI Ageing and Aged Care Awareness Training. 

Single quality framework for aged care, led by Department of Health (Ageing and Aged Care)
Includes materials for accreditation and quality review (RACF, home care, National Aboriginal and Torres Strait Islander) and Education resources for staff in aged care.

Volunteer Education, led and funded by beyondblue
beyondblue has developed free training materials for volunteers that support older people in residential or community aged care settings.

Cognitive Decline Partnership Centre
The NHMRC Partnership Centre: Dealing with Cognitive and Related Functional Decline in Older People (Cognitive Decline Partnership Centre) aims to improve the lives of people with dementia by developing, communicating, and implementing research that improves care.


We would welcome your help in identifying other Australian projects and resources that contribute to the provision of palliative care in aged care. Please email your suggestions to palliaged@flinders.edu.au

Page updated 06 November 2018