Finding the right person to talk to is important with a life-limiting illness
If you need help now
- Ring 000 if it is an emergency
- Ring Healthdirect on 1800 022 222 for health advice
- Ring Lifeline on 13 11 14 if you experience emotional distress
There will often be people around you at this time. This may be your family and friends. It could also be the health professionals who are involved in caring for you. You may be able to think of someone that you would like to develop a bond with. This would be someone to talk to; someone who will listen to any concerns, and discuss what is happening without judging what is being said.
It can be difficult to work through your emotions and feelings on your own.
You may not want to share what you are feeling with your family and friends. There may be many different reasons for this. You may find that talking to someone may help. This could be a professional who is not directly involved in your care. Ask about referral for counselling. This is really about someone to listen to you.
You may find a support group useful. Sometimes it is easier to talk with other people who are going through similar experiences.
For patients: There are different kinds of groups. Sometimes they are for the same specific disease type (such as Alzheimer's disease). Sometimes they are for patients with similar problems (such as cancer support groups). There are face-to-face support groups. There are also online support groups. These offer forums, bulletin boards and chat rooms. Visit the page on Finding Services and Support for a list of some of these groups.
For carers: You may want to go to a carer support group. Many of the disease specific organisations have them.
You may want to look at different ways of getting support. Remember that you don’t need to continue with it if it isn’t helpful. Ask for suggestions from your health professional.
Page created 05 November 2021
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