Pu L, Moyle W, Jones C, Todorovic M. Psychosocial interventions for pain management in older adults with dementia: A systematic review of randomized controlled trials.
J Adv Nurs. 2018 Dec 10. doi: 10.1111/jan.13929. [Epub ahead of print]
This systematic review of randomised control trials (RCT’s) aimed to examine the effectiveness of psychosocial interventions as supportive interventions to manage pain in older adults living with dementia in any setting. Pain is one of the most common issues for people living with dementia however communication and cognitive difficulties can make assessment and management challenging. Pain management using analgesic medications can have serious side effects for dementia patients including confusion, falls and constipation. In this review eight RCT’s were included with a range of parallel, cross over cluster and multi-aim study designs. Half the studies were conducted in USA and one each from Australia, France, Netherlands and Spain. The studies included patients with mild, moderate, or advanced dementia and different pain histories. Psychosocial interventions used in the studies included sensory stimulation, massage, music, showering and physical activity for individuals or groups. The results show that sensory intervention for individuals may reduce observed pain, but the results should be viewed with caution as the quality of evidence in many of the studies was very low.
Lemoyne SE, Herbots HH, De Blick D, Remmen R, Monsieurs KG, Van Bogaert P. Appropriateness of transferring nursing home residents to emergency departments: a systematic review.
BMC Geriatr. 2019 Jan 21;19(1):17. doi: 10.1186/s12877-019-1028-z.
This systematic review examined the characteristics of Emergency Department (ED) transfers of Nursing Home (NH) residents. The review sought to describe definitions of appropriateness and to identify factors associated with inappropriate transfer. Seventy-seven studies were selected including 18 Australian studies, and observational study designs dominated (44 of 77 studies). Transfers to ED are often associated with a high risk of complications and mortality. It was found that NH residents were often transferred to ED after an exacerbation of an illness or an injury requiring acute medical services. The most common reasons for transfer were falls related trauma, altered mental state and infection. Transfers to ED were found to be associated with a high risk of complications and mortality and 4 to 55% of transfers were deemed inappropriate. It should be noted that definitions of inappropriate transfer to ED’s varied across studies which took place in countries with varied health and care systems. However, the main conclusions were supported by most of the studies and inappropriate transfers of NH residents to ED’s was widespread. The review highlighted the need to respect each individual’s autonomy, encourage advanced care planning, provide sufficient trained nursing staff, increase the role of GP’s in illness management and promote inter-professional collaboration between GP’s, NH staff and Ed’s.
Hukins D, Macleod U, Boland JW. Identifying potentially inappropriate prescribing in older people with dementia: a systematic review.
Eur J Clin Pharmacol. 2019 Jan 4. doi: 10.1007/s00228-018-02612-x. [Epub ahead of print]
People with dementia have high levels of comorbidities and may receive sub-optimal care including poor pain control and potential inappropriate prescribing (PIP). This has been associated with adverse drug reactions, hospitalisation, mortality and lower quality of life in older people with dementia. This review aimed to describe the tools used to identify PIP, the prevalence of PIP, medications identified as inappropriate, and to describe any advantages and disadvantages of the tools identified. Twenty-six studies were included in the review, most were observational and used at least one tool to measure PIP prevalence. One study was a non-randomised control evaluation of an intervention aimed at improving medication management. A total of 26,534 participants were included. The application of PIP tools varied considerably across the studies however the review did demonstrate that rates of inappropriate prescribing and polypharmacy were high in older people living with dementia. Rates of sedative and anticholinergic medication use were high despite the evidence of risks to people with dementia. To be effective tools need to be regularly updated and more comprehensive to include all potentially inappropriate medications.
Gonella S, Basso I, Dimonte V, Martin B, Berchialla P, Campagna S, et al. Association Between End-of-Life Conversations in Nursing Homes and End-of-Life Care Outcomes: A Systematic Review and Meta-analysis.
J Am Med Dir Assoc. 2018 Nov 20. pii: S1525-8610(18)30554-1. doi: 10.1016/j.jamda.2018.10.001. [Epub ahead of print]
This systematic review examines the impact of end of life (EOL) conversations with residents and families in Nursing Homes (NH) on end of life outcomes and decisions on the use of life sustaining interventions. Sixteen studies were included with ten from USA, four from Europe and one each from Canada and Asia. Only six of the 16 studies reported on advanced care directives and most conversations were between health professionals and family members even when the resident had the capacity to be involved. The findings suggest that health professional end of life conversations with the resident and family may promote the uptake of a palliative approach with less aggressive treatments. Specifically, meta-analysis showed a two-fold increased likelihood of limiting or withdrawing life-sustaining treatments following EOL conversations. Outcomes were not influenced by social, geographical or cultural context but were influenced by family member education level. EOL conversations were also shown to have a positive effect on a family’s satisfaction with EOL care and this was found to increase with the duration and frequency of discussions overtime. The review is limited by poor reporting of EOL conversation characteristics. However, the findings suggest that EOL conversations should be initiated from an early stage and take account of resident’s preferences.
Bone AE, Evans CJ, Etkind SN, Sleeman KE, Gomes B, Aldridge M, et al. Factors associated with older people's emergency department attendance towards the end of life: a systematic review.
Eur J Public Health. 2018 Nov 26. doi: 10.1093/eurpub/cky241. [Epub ahead of print]
This study examined factors associated with Emergency Department (ED) attendance by people over 65 years of age in the last year of life. ED presentations and resulting hospitalisations are a major cost pressure in end of life healthcare. Twenty-one, predominately US studies were included with a combined sample size of over 1.5 million participants. Only six studies reported on ED attendance in relation to advanced care planning, four in relation to palliative care-related interventions, and two in relation to hospice care. The systematic review identified service-related, socio-demographic factors and illness related factors associated with ED attendance. Based on six studies including three of high quality, people receiving palliative or hospice care had a lower attendance at ED in their last year of life. This supports accumulating evidence that modifiable service-related factors such as palliative care might influence ED presentation among older people in the last year of life.
Chung A, Collier A, Gott M. Community-led and/or focused initiatives to support family carers within a palliative care context: An integrative review.
Palliat Med. 2018 Dec 5:269216318813813. doi: 10.1177/0269216318813813. [Epub ahead of print]
Family carers play a crucial role in end of life and palliative care but often report unmet support needs and are at an increased risk of poor mental and physical health outcomes. There is growing interest in Public Health approaches that focus on building community capacity and support networks that can support family carers but the extent or nature of these types of initiatives is unknown. This review sought to identify current community focussed or community led initiatives that support people and their families with palliative care needs. The integrative review identified six community focussed evaluated initiatives. All six studies were led by a professional and three studies had community input either directly or in an advisory capacity. The main aim of most of the initiatives was to promote psychosocial wellbeing among carers and a variety of delivery methods including DVD’s, a website and network or community facilitation were used. All initiatives were shown to be of benefit to carers. The review highlighted the limited availability of evaluated initiatives and the authors called for further discourse and research involving communities in the process.
Liu JT, Kovar-Gough I, Farabi N, Animikwam F, Weers SB, Phillips J. The Role of Primary Care Physicians in Providing End-of-Life Care.
Am J Hosp Palliat Care. 2018 Oct 24:1049909118808232. doi: 10.1177/1049909118808232. [Epub ahead of print]
The current body of literature focused on ‘primary palliative care’ remains limited. Primary care physicians (PCPs) frequently have long-term relationships with patients as well as their families and the involvement of PCPs at the end of life has been linked to a number of positive outcomes. These include greater continuity of care, fewer hospital admissions and greater PCP involvement at the end of life. This study used a narrative review of the literature to develop a theoretical model based on the role's PCPs play in caring for people at the end of life. Most of the studies were from Europe and Canada. The review outlined four major roles that PCPs played in the care of adult patients at the end of life: pain and symptom management; information management, including transmitting and clarifying information, setting care priorities, and assisting patients with treatment decisions; coordinating care and collaborating with other providers; and addressing patients’ and families’ social, emotional, and spiritual needs. The four roles identified can have practical applications for assessing PCPs own practice, promoting a full scope of practice, and for education and health service planning.
Dixon J, Karagiannidou M, Knapp M. The Effectiveness of Advance Care Planning in Improving End-of-Life Outcomes for People With Dementia and Their Carers: A Systematic Review and Critical Discussion.
J Pain Symptom Manage. 2018 Jan;55(1):132-150.e1. doi: 10.1016/j.jpainsymman.2017.04.009. Epub 2017 Aug 5.
The purpose of this review was to identify and assess the evidence concerning the effectiveness and cost-effectiveness of Advance Care Planning (ACP) for people with dementia. ACP is particularly important for dementia patients and their carers as it can be a way of supporting peoples autonomy when they can no longer speak for themselves. ACP in dementia has special challenges as it may be difficult to identify a terminal phase or a lack of professional or family confidence in discussing end of life may result in hospital admissions toward the end of life. A palliative approach in the care of people with dementia is recommended but not always implemented. Eighteen studies were identified and most found ACP to be associated with some improvement in end of life outcomes. Most of the studies were from the USA and based in care-homes. The type of ACP and outcome measures used varied. Over half the studies were moderate to high quality, three were randomised control trials and two were of low quality. The review found that ACP is likely to be relevant for people with dementia and may be linked to a range of positive end-of-life outcomes. Recommendations were made for further research with priorities identified including measurement of patient/carer outcomes, outcomes in other settings beyond care-homes, and improved evaluation of ACP.
Zeng YS, Wang C, Ward KE, Hume AL. Complementary and Alternative Medicine in Hospice and Palliative Care: A Systematic Review.
Send to J Pain Symptom Manage. 2018 Nov;56(5):781-794.e4. doi: 10.1016/j.jpainsymman.2018.07.016. Epub 2018 Aug 2.
This review sought to identify and evaluate CAM therapies in palliative and hospice settings looking at symptom management and quality of life improvement. Patients, families or care givers may select CAM approaches when conventional therapy is not adequate for their symptoms or needs especially toward the end of life. Seventeen studies were identified for this review and the therapies included acupressure, acupuncture, aromatherapy massage, breathing, hypnotherapy, massage, meditation, music therapy, reflexology and reiki. The review highlighted short term benefits associated with CAM use in the management of symptoms, but between group differences were not significant. The authors called for further studies to look at the potential value of CAM in palliative care settings.
Thompson W, Lundby C, Graabaek T, Nielsen DS, Ryg J, Søndergaard J, et al. Tools for deprescribing in frail older persons and those with limited life expectancy: a systematic review.
J Am Geriatr Soc. 2018 Oct 13. doi: 10.1111/jgs.15616. [Epub ahead of print]
The aim of this review was to summarise available tools for deprescribing where frailty and/or limited life expectancy are specifically considered. A total of 15 tools were identified, but most were based on expert opinion and only four had been tested in clinical practice. Studies of use in clinical practice were of very low-quality. Classification of the 15 tools according to where they would be used in the deprescribing process was presented by the authors as a logical approach to reflect clinician need and to assist choice of the most appropriate tool. The categories were: models or frameworks (a high level first step approach to deprescribing as a general concept); entire medications list (approaches to identify and prioritise drugs for deprescribing); and approaches to specific medications (tools containing more specific information on deprescribing of individual drugs). Overall the review highlights the availability of tools to support deprescribing, but also highlights the lack of evaluation in clinical practice which in turn limits tool use in decision making.
Baillon SF1, Narayana U, Luxenberg JS, Clifton AV. Valproate preparations for agitation in dementia.
Cochrane Database Syst Rev. 2018 Oct 5;10:CD003945. doi: 10.1002/14651858.CD003945.pub4. [Epub ahead of print]
The authors of this review note that as many as 90% of people with dementia experience agitation and use of medications such as valproate to address this continues even though its use is not generally recommended in available guidelines. The aim of this Cochrane review was to determine the efficacy and adverse effects of valproate preparations used to treat agitation in people with dementia. Based on five studies including 430 participants receiving doses of valproate between 480mg/day and 1000mg/day, this review found no evidence for the efficacy of valproate in treating agitation in people with dementia. However, valproate use was associated with significantly higher rates of adverse effects (including serious adverse events), although these findings were based on moderate to very low-quality evidence. Adverse events associated with use of valproate included sedation, nausea, vomiting, diarrhoea, and urinary tract infections. Based on currently available evidence the authors could not recommend use of valproate for management of agitation in dementia; the potential for adverse effects outweighed any potential benefit.
Fitzpatrick JM, Tzouvara V. Facilitators and inhibitors of transition for older people who have relocated to a long-term care facility: A systematic review.
Health Soc Care Community. 2018 Sep 21. doi: 10.1111/hsc.12647. [Epub ahead of print]
Relocation to a long-term care facility often accompanies functional and cognitive impairment, and/or need for assistance with activities of daily living. However, for the person and their family this can be a stressful time that is often poorly understood by care facility providers. To address this gap in understanding, a total of 34 studies mostly moderate to high-quality qualitative studies from twelve countries (including one from Australia) were examined. Facilitators and barriers to transition were mapped to four themes: resilience of the older person (capacity to make sense of and come to terms with relocation); interpersonal relationships and connections; this is my home (home-like but not replacing one’s home); and care facility as an organisation (organisational culture, approaches to care and workforce factors). For each of these themes approaches to maximise facilitators and minimise barriers are discussed. For example, it is proposed that the older person’s resilience might be positively influenced through support for self-efficacy, and continuation of one’s faith, values and beliefs, and ethnic identity. Although the research conducted in this area has been very heterogeneous and hence the generalisability of findings limited, the review has highlighted potential transition facilitators and inhibitors. Knowledge of these may be of use in supporting the transition of older people to long-term care facilities.
Cresp SJ, Lee SF, Moss C. Substitute decision makers’ experiences of making decisions at end of life for older persons with dementia: A systematic review and qualitative meta-synthesis.
Dementia (London). 2018 Sep 25:1471301218802127. doi: 10.1177/1471301218802127. [Epub ahead of print]
Substitute decision makers have a major role in deciding on care options for people with dementia at end-of-life. Yet, according to the authors of this review much of the research into advance care planning has ignored the needs and support of substitute decision makers. The aim of this review was to examine how substitute decision makers are affected by and experience making decision for older persons with dementia. Based on seven articles published in the last ten years, the review provides insights gained from small to medium sized studies conducted in Australia, Spain, the US, and UK. Synthesis yielded five findings: trust; guilt, mistrust and confusion; translating quality of life; negotiating families; and uncertainty and reactivity. Of central importance across the themes was the role of health professionals, including development of trust with substitute decision makers and communicating with them to improve clinical understanding and capacity for proactivity. Based on this review six practice recommendations are made to address the needs of substitute decision makers caring for people with dementia. However, the authors caution that these are weak recommendations because of uncertainty around reported outcomes. The authors suggest a list of needed research to address this.
Van Leeuwen E, Petrovic M, van Driel ML, De Sutter AI, Stichele RV, Declercq T, et al. Discontinuation of Long-Term Antipsychotic Drug Use for Behavioral and Psychological Symptoms in Older Adults Aged 65 Years and Older With Dementia.
J Am Med Dir Assoc. 2018 Aug 9. pii: S1525-8610(18)30361-X. doi: 10.1016/j.jamda.2018.06.023. [Epub ahead of print]
Based on 10 randomised controlled trials, this update of a Cochrane systematic review examined the impact and feasibility of discontinuation of long term antipsychotic drugs for behavioural and psychological symptoms (BPSD) in older people with dementia. All included studies were published before 2013, and were generally of low to very low quality, with limited statistical power. However, pooled meta-analysis on two comparable studies found no significant difference in neuropsychiatric inventory score for discontinuation versus continuation after three months. Results from seven studies supported this finding, although between study differences precluded inclusion for meta-analysis. Similarly, the available evidence did not show any difference in adverse events for discontinuation versus continuation. Subgroup analyses suggested that discontinuation might reduce agitation in less severe BPSD but worsen BPSD in those with more severe BPSD at baseline. While this review was limited by the low quality of available studies, the authors suggest that discontinuation of long-term use antipsychotics for BPSD in older people with dementia should be considered.
Barker RO, Craig D, Spiers G, Kunonga P, Hanratty B. Who Should Deliver Primary Care in Long-term Care Facilities to Optimize Resident Outcomes? A Systematic Review.
J Am Med Dir Assoc. 2018 Aug 31. pii: S1525-8610(18)30388-8. doi: 10.1016/j.jamda.2018.07.006. [Epub ahead of print]
This review investigated the impact of different health professional group input on the health-related outcomes of older adults in long-term care facilities. Based on 24 studies published since 2000, including six conducted in Australia, the most common comparison was that of specialist doctor or specialist nurse versus usual primary care (mostly primary care generalist). Specialist practitioner was defined as a professional with a specific remit for older patients and/or specialist training such as geriatrics. Four studies were randomised controlled trials (RCTs), and unplanned transfer to hospital was the most commonly reported outcome followed by prescribing and mortality. Specialists doctor input was found to be strongly associated with improved prescribing but uncertain for reduced transfers, while specialist nurse input was associated with decreased unplanned hospital transfers but uncertain for improved prescribing. Neither professional group was associated with any impact on mortality. This review of international studies did not examine the potential impact of health system differences on the reported outcomes, and this limits generalisation of results. However, strong support for the potential impact of specialist doctor and specialist nurse input on improved prescribing and reduced unplanned transfers to hospital from long-term care facilities was shown.
Góngora Alonso S, Hamrioui S, de la Torre Díez I, Motta Cruz E, López-Coronado M, Franco M. Social Robots for People with Aging and Dementia: A Systematic Review of Literature. Telemed J E Health.
2018 Aug 23. doi: 10.1089/tmj.2018.0051. [Epub ahead of print]
This review sought to examine available evidence for the use of social robots among people with dementia and/or aging. Although 38 articles were included, approximately half of these were conference articles rather than peer reviewed journal articles. Nevertheless, this is an area of increasing interest, and a broad spectrum of social robots was identified. Most articles were published or presented in the last five years. Acceptance by older people was found to differ in line with their differing social needs and capacity; people with dementia were more accepting of the technology. Promoted as an approach to addressing loneliness, isolation, depression and dependence, newer robots are now incorporating videoconferencing capability to connect people with dementia and their family members. However, simpler, social robots such as the widely-known PARO robot were found to be better accepted. Although this is an emerging field, and the availability of robust evidence still very limited, this review highlights the need to consider social environment and capacity when developing robots to assist in the care of older people with or without dementia. This review provides a preliminary insight into the available and emerging evidence behind this finding, and the need for more robust evaluation.
Vrkljan B, Montpetit A, Naglie G, Rapoport M, Mazer B. Interventions that support major life transitions in older adulthood: a systematic review.
Int Psychogeriatr. 2018 Jul 11:1-23. doi: 10.1017/S1041610218000972. [Epub ahead of print]
This systematic review examined the effectiveness of interventions on major life transitions that can negatively impact on the emotional well being of older people. Eleven studies were included that examined eight unique interventions focused on the three most common transitions in older adulthood, bereavement, retirement, and relocation of residence to a higher level of care (assisted or residential care). The studies included RCT’s, individual and group based interventions. Although findings suggested group based interventions delivered by trained personnel can be effective in mitigating the negative health related consequences associated with major life transitions in later life, the methodical quality of the studies was weak.
McDermott E, Selman LE. Cultural factors influencing Advance Care Planning in progressive, incurable disease: A systematic review with narrative synthesis.
J Pain Symptom Manage. 2018 Jul 16. pii: S0885-3924(18)30345-2. doi: 10.1016/j.jpainsymman.2018.07.006. [Epub ahead of print]
This study examined how cultural factors influence Advance Care Planning (ACP) for patients with serious illness. It also examined how cultural background influences acceptability of ACP and what cultural factors practitioners need to be aware of aware of in approaching communication and planning with patients and families about end of life (EOL) issues. This systematic literature review included 27, mostly US-based studies of which 20 were quantitative, 4 qualitative and 3 mixed methods approaches. A key strength of the study was the expanded focus to include Ethnicity, and religion/spirituality, and nationality or country of residence. The study found that there are a number of interconnected cultural factors influencing ACP, with less formal, communication-focussed approaches valued and warranting further research. The authors call for more research to adapt ACP to meet the needs of culturally diverse groups.
Fitzgerald R, Gallagher J. Oral health in end-of-life patients: A rapid review.
Spec Care Dentist. 2018 Jul 19. doi: 10.1111/scd.12316. [Epub ahead of print]
This was the first rapid review of the oral health of end-of-life( EOL) patients from a dental perspective. Despite the well-established link between oral health and quality of life there has been little consideration given to the oral health of patients approaching EOL. The aim of this review was to synthesize existing evidence to assist clinicians and decision makers and facilitate further research. A total of 19 studies were included, of these 15 were observational studies: five
retrospective cohort studies and 10 cross sectional studies. Studies were drawn from nine countries and although most were of poor quality, they highlight the need to establish a stronger evidence base. The review showed that oral health and oral health-related quality of life was poor, with high rates of dental disease in end-of-life and palliative care populations. Barriers to providing oral care included patient comorbidity and physical difficulties. The review identified the need for more professional support and care for this population.
Moon F, McDermott F, Kissane D. Systematic Review for the Quality of End-of-Life Care for Patients With Dementia in the Hospital Setting.
Am J Hosp Palliat Care. 2018 Jan 1:1049909118776985. doi: 10.1177/1049909118776985. [Epub ahead of print]
This systematic review looks at how the current literature describes the quality of end of life care for patients with dementia in the hospital setting. The review assessed 26 articles concerning medical, nursing, and psychosocial care, and sought to identify clinical issues, care provisions, and indicators for future end of life care guidelines. The findings showed patients with dementia are less likely to receive aggressive care at the end of life compared to those without dementia, but there may be inadequate palliative care interventions and symptom management for those with dementia. This was considered to be linked to the debate regarding dementia not being conceptualised as a terminal condition. Some limitations to the study were identified around how palliative and end-of-life care was defined and the studies included represented mainly Western attitudes toward care which may not be appropriate to other cultural contexts. The study did provide a platform to develop specific end-of-life care guidelines and 7 principles to manage end-of-life care patients with dementia were suggested for consideration: The review highlighted the need for further research in the areas of greater education of health professionals and engagement of family caregivers in optimizing end-of-life care for patients with dementia.
Baird LG, Fraser K. Home Care Case Managers' Integrated Care of Older Adults With Multiple Chronic Conditions: A Scoping Review.
Prof Case Manag. 2018 Jul/Aug;23(4):165-189. doi: 10.1097/NCM.0000000000000286.
This scoping review examined the extent, range, and nature of available research on home care case manager’s (HCCMs) provision of integrated care for older adults with multiple chronic conditions (MCCs) in community home care settings. Searches for relevant literature across seven databases identified 14 relevant articles, including five quantitative studies. The review showed HCCMs most frequently use case management standards of practice of assessment, planning, implementation, and evaluation to provide professional integrated care and clinical integrated care functions and these were found to be both facilitators and barriers to integrated care. The study proposed the development of evidence based HCCM practice guidelines, and the development of a new case management and integrated care conceptual framework. Understanding how HCCM provide integrated care could have the potential to reduce fragmented care, and enhance the delivery of person-focused quality care to older adults with MCCs.
Paulis SJC, Everink IHJ, Halfens RJG, Lohrmann C, Schols JMGA. Prevalence and Risk Factors of Dehydration Among Nursing Home Residents: A Systematic Review.
J Am Med Dir Assoc. 2018 Aug;19(8):646-57.
This systematic review looked at the prevalence and risk factors of dehydration among nursing home residents. Dehydration is a condition that results from excessive loss of body water with or without sodium and is a relevant and frequently occurring problem for nursing home residents. Nineteen mostly moderate to high quality studies were included and the prevalence rates of dehydration varied between 0.8% and 38.5% and were measured using different methods. A total of 49 potential risk factors for dehydration were identified. The study revealed a wide variety of methods for measuring dehydration, and was limited by uncertainty as to which type of dehydration (chronic or acute) was being measured. There was also a lack of universally agreed operationalisation. The different methods of identification made it difficult to compare prevalence rates. Only two of 49 potential risk factors (fever and cognitive impairment) were more than once significantly associated with dehydration. The study concluded that more research into dehydration among nursing home residents is needed to develop more uniform, reliable detection methods and more clarity of potential risk factors to support early tailored prevention strategies for this target group.
Greenwood N, Menzies-Gow E, Nilsson D, Aubrey D, Emery CL, Richardson A. Experiences of older people dying in nursing homes: a narrative systematic review of qualitative studies.
BMJ open. 2018;8(6):e021285.
Recognition of the importance of providing good end-of-life care for older people in residential care is growing. This study sought to identify and synthesise qualitative research investigating older people’s experiences of dying in residential care. Based on nine studies, including six from the US, the findings highlighted a number of issues faced by older people dying in residential care, including: physical discomfort related to potentially avoidable symptoms, inappropriate food and drink, limited assessment, and monitoring. Loneliness and depression were also common findings in many of the studies, and highlighted the critical value of professional sensitivity to the broader psychosocial aspects of the older persons dying experience. The review also noted there was a need to include the subjective experiences and perspectives of patients themselves and those most closely involved with older people’s dying experience to inform future service improvement.
Du Preez J, Millsteed J, Marquis R, Richmond J. The Role of Adult Day Services in Supporting the Occupational Participation of People with Dementia and Their Carers: An Integrative Review.
Healthcare (Basel). 2018 May 8;6(2). pii: E43. doi: 10.3390/healthcare6020043.
This review looked at the role attendance at community-based adult day therapy services play in supporting the occupational participation of people with dementia and the impact on primary carers. A total of 16 studies were included in the integrated review. Day therapy services provide a broad range of personalised services aimed at enhancing the occupational participation, quality of life and well-being of attendees by providing support to remain in their own homes and by providing respite to carers. Attendance at day therapy service was found to positively impact on physical and psychological functioning by reducing feelings of social isolation, anxiety, and depression. According to the authors, while the evidence supports the benefits of adult day services they remain underutilised. Cost of care and privacy concerns contribute to this outcome. The promotion of the aging-in-place approach may mean there is an increased reliance and expectation on informal carers to undertake the caring role where service providers actively involved carers early institutionalisation of people with dementia was found to be delayed and was also associated with improved caregiver outcomes. People with dementia and family carers require access to flexible, informative and collaborative services.
Mogan C, Lloyd-Williams M, Harrison Dening K, Dowrick C. The facilitators and challenges of dying at home with dementia: A narrative synthesis.
Palliat Med. 2018 Jun;32(6):1042-1054. doi: 10.1177/0269216318760442.
Providing end-of-life care to people with dementia poses a significant challenges to healthcare and communities. This study aimed to identify and synthesise the literature relating to the challenges and facilitators of providing end-of-life care at home for people with dementia. Seven papers, four quantitative and three qualitative, were included in the study. Sample sizes ranged from 4 to 210, with 597 participants in total across the studies. The study identified six key themes four facilitators and two challenges. Facilitators identified included; caregiver resilience; social networks; medications and symptom management and health care professionals support. Challenges identified included; issues with professional services and deteriorating physical or mental health. The research showed people with dementia may not always require specialist palliative care at the end of life and that research into community development and public health approaches like compassionate communities are needed so families can be supported to allow a greater number of people with dementia to die at home.
Anker‐Hansen C, Skovdahl K, McCormack B, Tønnessen S. The third person in the room: The needs of care partners of older people in home care services - A systematic review from a person‐centred perspective.
J Clin Nurs. 2018 Apr;27(7-8):e1309-e1326. Epub 2018 Mar 26.
This study looked at the needs of care partners of older people receiving home care services. There has been an increasing shift toward people wanting to ‘age in place’ and be cared for in the community. Carers have been called the ‘invisible aid corps’ as they perform many care tasks. With the focus now on person-centred care it is important to acknowledge carers as care partners working with care services to provide quality care. The term ‘care partner’ implies a more balanced relationship between all parties in the care situation. Sixteen studies were included, eleven qualitative and five quantitative, which aimed at developing knowledge about care partners' needs, possible approaches and gaps in current knowledge in the area. The results indicate that care partners have unmet needs and want trustworthy services able to adapt to their needs, more information and training as well as relief and support. The review proposed that a model for systematic collaboration between care partners and home care services be developed based on the principles of patient-centred care. Although this study had some limitations, it is one of the first systematic reviews to identify a gap in the current knowledge about what care partners of older people with mental health problems living at home need from home care services.
Legere LE, McNeill S, Schindel Martin L, Acorn M, An D. Nonpharmacological approaches for behavioural and psychological symptoms of dementia in older adults: A systematic review of reviews.
J Clin Nurs. 2018 Apr;27(7-8):e1360-e1376. doi: 10.1111/jocn.14007.
Dementia prevalence is expected to increase and strategies are required to give effective care and support to people living with dementia and their carers in all health and care settings. An important focus for people with dementia is appropriate care for behavioural and psychological symptoms of dementia (BPSD). BPSD can affect 80% of people with dementia and is often used to describe symptoms such as changes in mood, delusions, apathy, agitation, wandering, calling out, repetitive questioning and sexual disinhibition. BPSD can be challenging for family, caregivers and healthcare providers to manage and has been found to potentially increase the likelihood that persons with dementia are admitted to a residential care facility. The aim of this systematic review was to synthesise existing evidence on non-pharmacological approaches for managing BPSD in older persons with dementia. There were 18 international reviews included covering both individual therapies as well as targeted and organisational interventions. The most conclusive evidence supported individual, sensory-focused interventions such as music therapy, interventions targeting pain, person-centred approaches and education for family caregivers. The study found a need for further research for interventions best suited for specific behaviours and contexts, particularly inappropriate sexual behaviours.
Quispel-Aggenbach DWP, Holtman GA, Zwartjes H, Zuidema SU, Luijendijk HJ. Attention, arousal and other rapid bedside screening instruments for delirium in older patients: a systematic review of test accuracy studies.
Age Ageing. 2018 Apr 25. doi: 10.1093/ageing/afy058. [Epub ahead of print]
Delirium is a serious neuropsychiatric disorder that occurs frequently in patients in hospitals and nursing homes. As one third of cases go undetected, the aim of this study was to review the sensitivity and specificity of rapid screening instruments to increase detection but be easy and rapid to use. Twenty seven studies of screening instruments were identified that tested accuracy and were easy to administer (<3 minutes). Two arousal tests the Observational Scale of Level of Arousal (OSLA) and Richmond Agitation and Sedation Scale (RASS) were best able to identify delirium cases in older patients. The advantage of rapid and frequent screening was that only screen positive cases need more extensive diagnostic follow up.
Ferrah N, Ibrahim JE, Kipsaina C, Bugeja L. Death Following Recent Admission Into Nursing Home From Community Living: A Systematic Review Into the Transition Process.
J Aging Health. 2018 Apr;30(4):584-604. doi: 10.1177/0898264316686575. Epub 2017 Feb 5.
This study investigates the impact of transition to a nursing home from the community at one, three and six months post first hospital admission. Specifically, it examines the impact of transition on the mortality of elderly individuals following admission and the causes and risk factors for death. Eleven cohort studies were analysed. Mortality was measured at different time intervals in the first 6 months post admission and varied from 0% to 34% with a median of 20%. The decision to admit a person to a nursing home was commonly motivated by the belief that they are no longer safe at home, however newly admitted older people are at 2-12 times greater risk of dying than those remaining in the community. The review confirmed that newly admitted residents experienced higher mortality rates even after controlling for physical health and sociodemographic characteristics. This raises the possibility of modifiable risk factors including transition process and facility characteristics, as independent contributors to mortality. This review highlights these findings and current gaps in knowledge that need to be addressed.
Abrahams R, Liu KPY, Bissett M, Fahey P, Cheung KSL, Bye R, et al. Effectiveness of interventions for co-residing family caregivers of people with dementia: Systematic review and meta-analysis.
Aust Occup Ther J. 2018 Mar 12. doi: 10.1111/1440-1630.12464. [Epub ahead of print].
People living with dementia experience increasing difficulties in daily tasks as the disease progresses, and co-residing family members are often required to take up the caregiving role. Care giving has significant impacts on family members and burden, depression, decreased health and social support can increase the likelihood that care recipients will be moved to assisted living accommodation. The effects of multicomponent interventions specifically targeting these four important outcomes has not been established. This review examined twenty-two studies and demonstrated a significant impact of interventions on all four outcomes. Multi-component interventions consisting of a combination of counselling, support groups, education, stress and mood management or telephone support were identified as effective interventions. Changes in these caregiver-related outcomes may delay the need for care recipients to move to assisted accommodation. The results of this review are useful to health practitioners and researchers in supporting caregivers to care for people with dementia.
Etkind SN, Bone AE, Lovell N, Higginson IJ, Murtagh FEM. Influences on Care Preferences of Older People with Advanced Illness: A Systematic Review and Thematic Synthesis.
J Am Geriatr Soc. 2018 Mar 7. doi: 10.1111/jgs.15272. [Epub ahead of print].
This study aimed to identify influences on care preferences of older people with advanced illness and to integrate the results into a model to guide practice and research.
57 relevant articles reported on older adults with advanced illness: people with specific illnesses and markers of advanced disease; populations identified as in the last year of life; or individuals receiving palliative care. Preferences can be broadly classified as: preferences for the context in which care is delivered; preferences for care relationships; preferences for involvement in care; and preferences for care outcomes, such as comfort versus extending life or place of death. The review showed that family and care context, particularly support from family were dominant influences on care preferences. Concerns about the carer or family and the wish not to be a burden influenced options for end-of-life care. These factors combined with individual and illness-related factors were found to influence preferences through mechanisms of trade-offs, expectations, engagement, and the ability to form and express preferences. Practitioners should take these factors into account when considering care preferences. The stability of care preferences was unclear and warrants further research.
Fang B, Yan E. Abuse of Older Persons With Dementia: A Review of the Literature.
Trauma Violence Abuse. 2018 Apr;19(2):127-147. doi: 10.1177/1524838016650185. Epub 2016 May 31.
Based on 49 published studies, this detailed systematic review found varying rates of abuse in older persons with dementia ranging from 0.3% to 78.4% in the community and 8.3% to 78.3% in institutional settings. These rates are much higher than the rates of 3.2–27.5% recorded in general older populations. Caring for people with dementia has been shown to increase the risk of caregiver burnout which can potentially lead to abuse of care recipients. Abuse of people with dementia often goes unnoticed and previous studies indicate that bystanders observe behaviour as ‘‘less abusive’’ when the victims have dementia. Substantial variation in reported rates of abuse were also noted according to type of abuse. Rates for physical abuse ranged from 1.5% to 78.4%, psychological abuse from 3.5% to 75%, caregiver neglect from 0.3% to 78.3%, financial abuse from 0.3% to 2.5%, and self-neglect 12.6%. This variation was in part due to study methodological variation. Most of the included studies were conducted in Western countries, however, higher rates of abuse were reported in Asian settings. Studies on abuse of residents with dementia in institutional settings were underrepresented in the literature. The presence of cognitive impairment compounded by minimal oversight, insufficient regulations, and low staff ratios can potentially conspire to enhance the risk of abuse. Based on the finding that the most relevant risk factors for abuse were related to dementia symptoms the authors call for the development of disease-sensitive screening tools to capture the specific characteristics of abuse involving older persons with different stages of dementia.
Booth V, Hood V, Kearney F. Interventions incorporating physical and cognitive elements to reduce falls risk in cognitively impaired older adults: a systematic review.
JBI Database System Rev Implement Rep. 2016 May;14(5):110-35. doi: 10.11124/JBISRIR-2016-002499.
Older adults with cognitive impairment such as dementia have an increased risk of falling. The aim of the review was to identify the effectiveness of combined cognitive and physical interventions on the risk of falls in cognitively impaired older adults. The review was based on eight randomized controlled trials that evaluated the effectiveness of multicomponent exercise programs, including physical and cognitive activities, music-based group exercise and mind-body tai chi on falls. Overall, multicomponent interventions incorporating both physical and cognitive components demonstrated positive effects on balance, functional mobility and gait speed when compared with a control and had significantly better effect on balance and gait speed within mild cognitive impairment populations.
Moon H, Dilworth-Anderson P, Gräske J. The effects of placement on dementia care recipients’ and family caregivers’ quality of life: a literature review.
Qual Ageing Older Adults. 2017;18(1):44-57.
The paper looked at the quality of life (QoL) of both caregivers (CGs) and care recipients (CRs) with dementia after admission to long-term care facilities. The review of 12 studies in a variety of care settings revealed a discrepancy in the effects of institutionalisation on the QoL of CRs and CGs. CR's QoL varied between significant decline and stable or improved QoL, while outcomes for CG's indicated that they benefited from the placement or maintained their QoL. Despite the variability in the studies, it was noted that CRs in small-scale facilities such as a group home or a specialised care setting, which focus on person centred care environments, showed better outcomes. The study concluded that the influence on QoL can provide guidance for best practice but there is a need for further research to address the needs of older people in residential care settings and their caregivers.
Kojima G, Liljas A, Iliffe S, Walters K. Prevalence of frailty in mild to moderate Alzheimer's disease: A systematic review and meta-analysis.
Curr Alzheimer Res. 2017;14(12):1256-1263. doi: 10.2174/1567205014666170417104236.
Although physical frailty and cognitive impairment have been shown to be associated, evidence on the prevalence of frailty in Alzheimer's disease is scarce. This systematic review explored the contribution of cognitive assessment in frailty operationalisation. The review looked at the prevalence of frailty and the combined data to synthesise the pooled prevalence of physical frailty among patients with Alzheimer’s disease. Five studies incorporating 534 patients with Alzheimer's disease were included for the meta-analysis. The study showed that frailty is highly prevalent in older patients with Alzheimer’s disease in the community. The prevalence of frailty varied from 11.1% to 50.0% and the pooled prevalence was 31.9%. However the findings of this review should be interpreted with caution as the true prevalence of frailty among patients with Alzheimer’s disease is expected to be much higher as end-stage patients may not be able to participate in studies or perform measurements of physical frailty components due to severe cognitive and or physical limitations.
El-Saifi N, Moyle W, Jones C, Tuffaha H. Medication Adherence in Older Patients With Dementia: A Systematic Literature Review.
J Pharm Pract. 2017 Jan 1:897190017710524.
Medication non-adherence is of potential significance for palliative care approaches in people with dementia. In a systematic review of 20 mostly retrospective studies from 13 countries, it was found that medication adherence ranged from 17% to 42% across 7 studies. The factors contributing to non-adherence included patient characteristics (older age, female gender), condition, number and type of medications prescribed, and socioeconomic factors (literacy and level of education). Only two studies reported on interventions to improve adherence, telehealth home monitoring and treatment modification (transdermal patches in place of oral medications), and in both improvement was reported. Between study heterogeneity (including method for monitoring adherence) precluded meta-analysis, however, low levels of medication adherence in older people with dementia was demonstrated across the different study settings.
de Vries M, Seppala LJ, Daams JG, van de Glind EMM, Masud T, van der Velde N, et al. Fall-Risk-Increasing Drugs: A Systematic Review and Meta-Analysis: I. Cardiovascular Drugs.
J Am Med Dir Assoc. 2018 Jan 30. pii: S1525-8610(17)30698-9.
Based on 131 studies this systematic review and meta-analysis investigated cardiovascular drug use among older people and found that use of Loop diuretics was significantly associated with increased risk for falls [adjusted Odds ratio 1.36 (95% CI, 1.17, 1.57)]. In contrast, beta-blocking agents were significantly associated with a decreased risk for falls [adjusted Odds ratio 0.88 (95% CI 0.80, 0.97)]. While further studies are called for, particularly with respect to beta-blocking agents, this comprehensive review including 45 individual cardiovascular drugs provides a useful overview of the potential association with fall risk.
Herman M, Horner K, Ly J, Vayl Y. Deactivation of Implantable Cardioverter-Defibrillators in Heart Failure: A Systematic Review.
J Hosp Palliat Nurs. 2018 Feb;20(1):63-71.
The aim of this systematic review of adults with heart failure was to identify problems that may delay deactivation of implantable cardioverter-defibrillators (ICD) to avoid distressful events such as multiple electrical shocks within the last 24 hours of life. Based on nine, predominately US-based studies reporting on more than 25,000 patients in total, it was found that discussions with patients about deactivating ICDs are rare and patient knowledge lacking. Care providers were uncomfortable about initiating discussions and lacked confidence to perform deactivation. This review supports the need for improved patient and provider education in the US, but also highlights information needs around ICD use that are likely to be relevant in other settings.
Fringer A, Hechinger M, Schnepp W. Transitions as experienced by persons in palliative care circumstances and their families - a qualitative meta-synthesis.
BMC Palliat Care. 2018;17(1):22.
Based on 14 studies conducted predominately in Sweden and Canada, this qualitative meta-synthesis examined the experiences of patients and their families during transitions in palliative care (change of place, in level of care, or in goals of care). In those settings, a number of supportive and distressing factors were identified that affected the experience of transition. Numerous role adjustments associated with these changes were also listed, with these adaptations striving to maintain normality in daily life. Awareness of these findings might help nurses (and others) to support patients with palliative care needs and their families when in transition.
Gnanamanickam ES, Dyer SM, Milte R, Harrison SL, Liu E, Easton T, et al. Direct health and residential care costs of people living with dementia in Australian residential aged care.
Int J Geriatr Psychiatry. 2018 Jan 2. doi: 10.1002/gps.4842. [Epub ahead of print]
This analysis estimates the whole-of-system direct costs for people living with dementia in residential care and compares it to people without dementia living in residential care. Data were collected from 541 individuals living permanently in 17 care facilities across Australia. The average annual whole-of-system cost for people living with dementia in residential care was approximately AU$88 000 (US$ 67 200) per person in 2016. The cost of residential care constituted 94% of the total costs. The direct health care costs were comprised mainly of pharmaceuticals (55%), out-of-hospital attendances (25%), and hospitalisations (13%). While total costs were not significantly different between those with and without dementia, the cost of residential care was significantly higher and the cost of health care was significantly lower for people living with dementia.
Wahid AS, Sayama M, Jamshahid S, Kerwat D, Oyewole F, Saleh D, et al. Barriers and facilitators influencing death at home: A meta-ethnography.
Palliat Med. 2018 Feb;32(2):314-328. doi: 10.1177/0269216317713427. Epub 2017 Jun 12.
This meta-ethnography review looked at barriers and facilitators influencing death at home. Seven overarching barriers were identified: lack of knowledge, skills and support among informal carers and healthcare professionals; informal carer and family burden; recognising death; inadequacy of processes such as advance care planning and discharge; as well as inherent patient difficulties, either due to the condition or social circumstances. Four overarching facilitators were observed: support for patients and healthcare professionals, skilled staff, coordination and effective communication
Pérez HCS, Ikram MA, Direk N, Tiemeier H. Prolonged Grief and Cognitive Decline: A Prospective Population-Based Study in Middle-Aged and Older Persons.
Am J Geriatr Psychiatry. 2017 Dec 12. pii: S1064-7481(17)30559-6. doi: 10.1016/j.jagp.2017.12.00.
This study compared cognitive decline, assessed by repeated measures of different cognition domains, between persons with normal and prolonged grief, and a non-grieving reference population. The results suggest an association between prolonged grief and cognitive decline, but it was not possible to infer causality from this study nor detect any psychobiological mechanisms.
Norton SA, Ladwig S, Caprio TV, Quill TE, Temkin-Greener H. Staff Experiences Forming and Sustaining Palliative Care Teams in Nursing Homes.
Gerontologist. 2018 Jan 3. doi: 10.1093/geront/gnx20.
Rapid ethnographic assessments of 14 nursing homes were undertaken to develop a deeper understanding of the contextual issues faced by staff in developing and sustaining PCTeams. Teams that were sustainable were able to leverage their participation in the intervention to incorporate the PCTeam into usual care and to develop long-term PC goals aligned with the mission of the facility. The administrators’ role in fostering the development and sustainability of the nascent PCTeams cannot be underestimated. The PCTeams were sustainable in homes where administrators made it an institutional priority, supported it tangibly, and were relatively stable in their roles.
Broady TR, Saich F, Hinton T. Caring for a family member or friend with dementia at the end of life: A scoping review and implications for palliative care practice.
Palliat Med. 2018 Jan 1:269216317748844. doi: 10.1177/0269216317748844.
Family and friend carers play a significant role in supporting people with dementia at the end of their lives however, there is limited research on how these carers experience end-of-life care. In total, 22 papers were reviewed. Two main overarching themes of carer experiences were evident: (1) relationships and (2) the caring context. These overarching themes were shown to have an impact on the carer in terms of their sense of self and personal wellbeing.
Durepos P, Kaasalainen S, Sussman T, Parker D, Brazil K, Mintzberg S, Te A. Family care conferences in long-term care: Exploring content and processes in end-of-life communication.
Palliat Support Care. 2017 Dec 29:1-12. doi: 10.1017/S1478951517000773.
Family care conferences (FCCs) aim to increase structured systematic communication around goals and plans for the end of life. FCCs were implemented in four long term care sites in Ontario, Canada. The purpose of this substudy was to examine FCC content and such guiding processes as documentation and multidisciplinary staff participation. Content analysis of documents showed that the most discussed domains were: (1) physical issues such as pain and nutrition); (2) EoL care such as music during death, visitors, withdrawal of medications, EoL symptom management, funeral planning; and (3) social care including support for families and recreation for residents. The least discussed domain was loss/bereavement.
Pereira-Salgado A, Mader P, O’Callaghan C, Boyd L, Staples M. Religious leaders’ perceptions of advance care planning: a secondary analysis of interviews with Buddhist, Christian, Hindu, Islamic, Jewish, Sikh and Bahá’í leaders.
BMC Palliat Care. 2017 Dec 28;16(1):79. doi: 10.1186/s12904-017-0239-3.
This study looked at how religious leaders’ perspectives could improve how ACP programs respect patients’ faith backgrounds. Interview transcripts from a primary qualitative study conducted with religious leaders to inform an ACP website, ACPTalk,
were used as the data source for analysis. The authors noted that most leaders had some understanding of ACP and held ACP in positive regard. However, religious followers’ preferences for end-of-life care reflected family and geographical origins, cultural traditions, personal attitudes, and religiosity and faith interpretations.
Hunt LJ, Lee SJ, Harrison KL, Smith AK. Secondary Analysis of Existing Datasets for Dementia and Palliative Care Research: High-Value Applications and Key Considerations.
J Palliat Med. 2017 Dec 21. doi: 10.1089/jpm.2017.0309. [Epub ahead of print]
The authors looked at the role that secondary datasets could play in providing information germane to dementia and palliative care research. They conducted a broad search of a variety of resources to identify relevant datasets and to review potential applications and use of the data. They also noted potential validity and reliability concerns. The authors concluded that while secondary analysis of existing datasets requires consideration of key limitations, it can be a powerful tool for efficiently enhancing knowledge of palliative care needs among people with dementia.
Borotkanics R, Rowe C, Georgiou A, Douglas H, Makeham M, Westbrook J. Changes in the profile of Australians in 77 residential aged care facilities across New South Wales and the Australian Capital Territory.
Aust Health Rev. 2017 Dec;41(6):613-620. doi: 10.1071/AH16125.
This study characterised the demographic profile and utilisation of a large cohort of residential aged care residents, including trends over a 3-year period. The researchers found that the median age at admission over the 3-year period remained constant at 86 years but there were statistically significant decreases in separations to home (z
= 2.62, P
= 0.009) and a 1.35% increase in low care admissions. Widowed females were the common residents as well as the oldest. They also had the longest lengths of stay. Most permanent residents had resided in aged care for less than 3 years. Approximately 30% of residents were not born in Australia. Aboriginal residents made up less than 1% of the studied population.
Mallery LH, Moorhouse P, McLean Veysey P, Allen M, Fleming I. Severely frail elderly patients do not need lipid-lowering drugs.
Cleve Clin J Med. 2017 Feb;84(2):131-142. doi: 10.3949/ccjm.84a.15114.
After performing a systematic review, members of the Palliative and Therapeutic Harmonization (PATH) program and the Dalhousie Academic Detailing Service found that evidence does not support lipid-lowering therapy for severely frail elderly patients. They argue that there should be careful review of evidence before applying clinical practice guidelines to those who are frail.
Salamanca-Balen N, Seymour J, Caswell G, Whynes D, Tod A. The costs, resource use and cost-effectiveness of Clinical Nurse Specialist-led interventions for patients with palliative care needs: A systematic review of international evidence.
Palliat Med. 2017 Jun 1:269216317711570. doi: 10.1177/0269216317711570. [Epub ahead of print]
This systematic review looked at the costs, resource use and cost-effectiveness of Clinical Nurse Specialist-led interventions for patients with palliative care needs. Those with palliative care needs were defined as seriously ill patients and those with advanced disease or frailty who are unlikely to be cured, recover or stabilise. The authors found that Clinical Nurse Specialist interventions could help in reducing specific resource use such as hospitalizations/re-hospitalizations/admissions, length of stay and health care costs. However, they noted that costs-effectiveness was not able to be established given variability in study types and quality.
Painter V, Le Couteur DG, Waite LM. Texture-modified food and fluids in dementia and residential aged care facilities.
Clin Interv Aging. 2017 Aug 2;12:1193-1203. doi: 10.2147/CIA.S140581.
Dysphagia is common in people living with dementia and associated with increased risk of aspiration pneumonia, dehydration, malnutrition, and death. Texture-modified food and fluids (TMF) are commonly used. This review aimed to evaluate the evidence for TMF in dementia. After reviewing the 22 studies that met the inclusion criteria the authors concluded that there is a lack of evidence for people living with dementia and in residential care facilities that TMF improves clinical outcomes such as aspiration pneumonia, nutrition, hydration, morbidity, and mortality.
Milte R, Ratcliffe J, Bradley C, Shulver W. Evaluating the quality of care received in long-term care facilities from a consumer perspective: development and construct validity of the Consumer Choice Index – Six Dimension instrument.
Ageing Soc. 2017 Sept:1-23 First View.
The Consumer Choice Index – Six Dimension (CCI-6D) is a new instrument designed specifically to evaluate the quality of care received in long-term care from a consumer perspective. The analyses presented in this paper present evidence of construct validity for the individual dimensions of the CCI-6D instrument, as assessed through the relationships with variables hypothesised to be associated with the dimensions of the instrument. Therefore, the CCI-6D shows promise in its ability to evaluate the quality of care processes from the perspective of consumers in long-term care facilities.
Shepperd S, Cradduck-Bamford A, Butler C, Ellis G, Godfrey M, Gray A, et al. A multi-centre randomised trial to compare the effectiveness of geriatrician-led admission avoidance hospital at home versus inpatient admission.
Trials. 2017 Oct 23;18(1):491. doi: 10.1186/s13063-017-2214-y.
This trial registration describes planning for a multi-site randomised open trial of geriatrician-led admission avoidance hospital at home, compared with admission to hospital. Participants are randomised to geriatrician-led admission avoidance hospital at home or a control group of inpatient admission in a 2:1 ratio in favour of the intervention. The primary endpoint is 'living at home' (the inverse of death or living in a residential care setting).
Cartwright C, White B, Willmott L, Parker M, Williams G. Australian doctors’ knowledge of and compliance with the law relating to end-of-life decisions: implications for LGBTI patients.
Cult Health Sex. 2017 Oct 25:1-13. doi: 10.1080/13691058.2017.1385854.
Little is known about medical practitioners’ knowledge of, or attitudes to, the law in this area, especially in relation to LGBTI people, or how the law influences their decision-making. An Australian postal survey explored knowledge and attitudes of medical specialists to legal issues relating to withdrawing/ withholding life-sustaining treatment from adults without capacity. The authors reported that less than one-third of respondents correctly identified the same-sex partner as the legally authorised decision-maker. They concluded that LGBTI people may face multiple obstacles to having their end-of-life wishes respected.
Cardona-Morrell M, Kim JCH, Brabrand M, Gallego-Luxan B, Hillman K. What is inappropriate hospital use for elderly people near the end of life? A systematic review.
Eur J Intern Med. 2017 Jul;42:39-50. doi: 10.1016/j.ejim.2017.04.014. Epub 2017 May 11.
This review looked at the extent and causes of inappropriate hospital admission among older patients near the end of life. The authors found that the definition of ‘Inappropriate admissions’ near the end of life incorporated system factors, social and family factors meaning estimating the prevalence of inappropriate admissions varied substantially with non-clinical reasons reported such as poor availability of alternative sites of care; family requests; or too late an admission to be of benefit. The authors proposed two underlying concepts: Inappropriateness encompassing the patient's social circumstances or system factors; and avoidability when clinical management could have been dealt with at a lower level facility.
Bone AE, Gomes B, Etkind SN, Verne J, Murtagh FE, Evans CJ, et al. What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death.
Palliat Med. 2017 Oct 1:269216317734435. doi: 10.1177/0269216317734435. [Epub ahead of print]
Population ageing represents a global challenge for future end-of-life care. This study looked at where people will die from 2015 to 2040 across all care settings in England and Wales. The projections show that if current trends continue, numbers of deaths in care homes and homes will increase by 108.1% and 88.6%, with care home the most common place of death by 2040. If care home capacity does not expand and additional deaths occur in hospital, hospital deaths will start rising by 2023.
Hilmer SN, Gnjidic D. Prescribing for frail older people.
Aust Prescr. 2017 Oct 3;40:174-8.
People who are frail experience a higher incidence and severity of adverse drug events because of their medicine use and potential changes in pharmacokinetics and pharmacodynamics. Prescribing for these patients requires constant vigilance and review, considering the impact of every medicine, as well as overall drug load, comorbidities, function and goals of care. This article provides a useful overview of issues and considerations.
Fleming J, Calloway R, Perrels A, Farquhar M, Barclay S, Brayne C, et al. Dying comfortably in very old age with or without dementia in different care settings – a representative “older old” population study.
BMC Geriatr. 2017 Oct 5;17(1):222. doi: 10.1186/s12877-017-0605-2.
This study looked at associations between factors potentially related to reported comfort during very old people’s final illness: physical and cognitive disability, place of care and transitions in their final illness, and place of death. The results showed that care homes can provide care akin to hospice for the very old and support an approach of supporting residents to stay in their care home or own home if possible. Findings on reported high prevalence of multiple symptoms can inform policy and training to improve older old people’s end-of-life care in all settings.
Silva RS, Caldeira S, Coelho AN, Apóstolo JLA. Forgiveness facilitation in palliative care: a scoping review protocol.
JBI Database System Rev Implement Rep. 2017 Oct;15(10):2469-2479. doi: 10.11124/JBISRIR-2016-003.
The objective of this scoping review is to map the nature and extent of forgiveness facilitation interventions that have been implemented and evaluated in palliative care contexts.
De Roo ML, Tanghe MF, Van Den Noortgate NJ, Piers RD. Development and Validation of the Symptom Assessment to Improve Symptom Control for Institutionalized Elderly Scale.
Am Med Dir Assoc. 2017 Oct 14. pii: S1525-8610(17)30480-2. doi: 10.1016/j.jamda.2017.08.013. [Epub ahead of print]
This paper reports on the development of a multiple symptom self-assessment tool for use in nursing homes. The scale was developed from a Delphi process. A study of its use with residents showed that nurses found that the SATISFIE instrument was useful, applicable in daily practice, and sufficiently comprehensible for the patients.
Forbat L, Chapman M, Lovell C, Liu WM, Johnston N. Improving specialist palliative care in residential care for older people: a checklist to guide practice.
BMJ Support Palliat Care. 2017 Aug 2;0:1-7. Online First.
This study aimed to develop an evidence-based checklist in order to support specialist palliative care clinicians integrate care in residential nursing homes for older people. It was a grounded theory ethnographic study, involving non-participant observation and qualitative interviews. A palliative care needs round checklist was developed.
Cardona-Morrell M, Benfatti-Olivato G, Jansen J, Turner RM, Fajardo-Pulido D, Hillman K. A systematic review of effectiveness of decision aids to assist older patients at the end of life.
Patient Educ Couns. 2017 Mar;100(3):425-435. doi: 10.1016/j.pec.2016.10.007. Epub 2016 Oct 11.
Decision aids (DAs) provide high quality, synthesised information to help patients and clinicians compare the risks and benefits of treatment options. These tools can assist in making a shared decision about what is the best option. DAs at the end of life (EoL) can be helpful at a time of prognostic uncertainty. Existing DAs for EoL care in older adults were reviewed to assess their effectiveness and acceptability, and the involvement of family in decision-making. Overall, the available DAs seemed to enhance patient or surrogate-decision-makers’ knowledge of the care options and to reduce decisional conflict. The authors suggest some future improvements in DAs to guide people in the complex and sensitive treatment choices at the end of life.
Currow DC, Phillips J, Agar M. Population-based models of planning for palliative care in older people.
Curr Opin Support Palliat Care. 2017 Sep 16. doi: 10.1097/SPC.0000000000000304. [Epub ahead of print]
The world’s population is ageing more rapidly than ever before. To meet the current and projected care needs of older people, services require a broad understanding of demographic, clinical and health system issues. This review outlines the recent literature that can help to inform planning of palliative care services for older people.
Vermunt NPCA, Harmsen M, Westert GP, Olde Rikkert MGM, Faber MJ. Collaborative goal setting with elderly patients with chronic disease or multimorbidity: a systematic review.
BMC Geriatr. 2017 Jul 31;17(1):167. doi: 10.1186/s12877-017-0534-0.
The number of morbidities and the proportion of people suffering from multimorbidity increase with age. A patient-goal-oriented approach to health care could be beneficial and contribute to a patient’s wellbeing and quality of life. This study describes the emerging concepts of ‘collaborative goal setting’ and ‘priority setting’.
Holyoke P, Stephenson B. Organization-level principles and practices to support spiritual care at the end of life: a qualitative study.
BMC Palliat Care. 2017 Apr 11;16(1):24. doi: 10.1186/s12904-017-0197-9.
How can hospice palliative care - which recognises the importance of spiritual care at the end of life - better meet the religious, spiritual, and existential questions and needs often present at end of life? This study looked to hospice programs founded and operated on specific spiritual foundations to identify organisational-level practices that support high-quality spiritual care that then might be applied in secular healthcare organisations. Nine Principles for organisational support for spiritual care emerged from the interviews. They are presented as a potential multi-pronged framework for improving spiritual care, along with some organisational practices that could support each of the Principles.
Threapleton DE, Chung RY, Wong SYS, et al. Care Toward the End of Life in Older Populations and Its Implementation Facilitators and Barriers: A Scoping Review
. J Am Med Dir Assoc. 2017 Jun 13. pii: S1525-8610(17)30225-6. doi: 10.1016/j.jamda.2017.04.010
A scoping review identified key themes in EOL care. The authors found that quality EOL care for older populations requires many core components but the local context and implementation issues may ultimately determine if these elements can be incorporated into the system to improve care. Changes at the macro-level (system/national), meso-level (organizational), and micro-level (individual) wall need to be harnessed to implement service changes to provide holistic and person-centred EOL care for elderly populations.
Hiam L, Dorling D, Harrison D, McKee M. Why has mortality in England and Wales been increasing? An iterative demographic analysis.
J R Soc Med. 2017 Apr;110(4):153-162. doi: 10.1177/0141076817693599
Mortality increased in England and Wales in 2015. Demographic analysis indicates that the e largest contributors to this change in population life expectancy was from those aged over 85 years, with dementias making the greatest contributions in both sexes. The possible impacts of health and social system contexts were also raised.
Easton T, Milte R, Crotty M, Ratcliffe J. Where's the evidence? a systematic review of economic analyses of residential aged care infrastructure.
BMC Health Serv Res. 2017 Mar 21;17(1):226. doi: 10.1186/s12913-017-2165-8.
This review aimed to summarise the existing literature of economic evaluations of residential care infrastructure. Fourteen studies were included in the analysis. The authors noted there was a wide variation in approaches taken for valuing the outcomes associated with differential residential care infrastructures and little specific economic analysis.
Huntley AL, Chalder M, Shaw ARG, Hollingworth W, et al. A systematic review to identify and assess the effectiveness of alternatives for people over the age of 65 who are at risk of potentially avoidable hospital admission.
BMJ Open. 2017 Aug 1;7(7):e016236. doi: 10.1136/bmjopen-2017-016236.
What admission alternatives are there for older patients and are they safe, effective and cost-effective? This review found 19 studies and 7 systematic reviews relevant to the topic. A number of interventions were identified including paramedic/emergency care practitioners (n=3), emergency department-based interventions (n=3), community hospitals (n=2) and hospital-at-home services (n=11).
The data suggested that alternatives to admission appear safe with potential to reduce secondary care use and length of time receiving care.
Morley JE, Arai H, Cao L, Dong B, Merchant RA, Vellas B, et al. Integrated Care: Enhancing the Role of the Primary Health Care Professional in Preventing Functional Decline: A Systematic Review.
J Am Med Dir Assoc. 2017 Jun 1;18(6):489-494.
A number of validated screening tests for older persons at risk for physical and cognitive frailty have been developed. These tools can be used by primary care health providers to recognize older persons with early frailty. There are medical and lifestyle interventions that appear to have the ability to slow down the development of frailty. The use of computer-assisted diagnosis and management programs may also be helpful in increasing the reach and effectiveness of these screening activities. The evidence suggests that use of these programs by primary health providers may lead to improved function in older persons.
Cook I, Kirkup AL, Langham LJ, Malik MA, Marlow G, Sammy I. End of Life Care and Do Not Resuscitate Orders: How Much Does Age Influence Decision Making? A Systematic Review and Meta-Analysis.
Gerontol Geriatr Med. 2017 Jun 12;3:2333721417713422. doi: 10.1177/2333721417713422. eCollection 2017 Jan-Dec.
With population aging, "do not resuscitate" (DNAR) decisions are becoming more common. This review examined the relationship between age and DNAR. Ten studies were included and eight showed that age affected DNAR independent of other mediating factors such as illness severity and likely outcome. Patients aged 75 to 84 and ≥85 years were more likely to have a DNAR compared with those <65 years. The authors noted that age increases the use of "do not resuscitate" orders, but more research is needed to determine whether this represents "ageism."
Ellis-Smith C, Evans CJ, Murtagh FE, Henson LA, Firth AM, Higginson IJ, et al. Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia.
Palliat Med. 2017 Jul;31(7):651-660.
This study used focus groups and interviews to examine the content validity and acceptability of the Integrated Palliative Care outcome Scale for Dementia. Participants saw it as a comprehensive and acceptable caregiver-reported measure and that it could be used without professional training.
Wongrakpanich S, Susantitaphong P, Isaranuwatchai S, Chenbhanich J, Eiam-Ong S, Jaber BL. Dialysis Therapy and Conservative Management of Advanced Chronic Kidney Disease in the Elderly: A Systematic Review.
Nephron. 2017 May 25. doi: 10.1159/000477361. [Epub ahead of print]
This systematic review looked at retrospective and prospective cohort studies of older adults with stage-5 chronic kidney disease who chose dialysis (hemodialysis or peritoneal dialysis) or opted for conservative management (including management of complications of CKD and palliative care. Generally older patients opted for more conservative management but there was significant heterogeneity in the studies.
Burkett E, Martin-Khan MG, Scott J, Samanta M, Gray LC. Trends and predicted trends in presentations of older people to Australian emergency departments: effects of demand growth, population aging and climate change.
Aust Health Rev. 2016 Jul 29;41(3):246-253.
The present study examined national ED presentation trends from July 2006 to June 2011, with specific emphasis on trends in presentation by age group. They found growth in ED presentations was greater than expected from population growth alone. Rates of presentation per head of population were highest for those over 85 years. This highlights the need for ED workforce planning and education in caring for this complex patient cohort. Funding models to incentivise investment in ED avoidance and substitutive care models targeting older people may also be needed.
Wallace CL, Swagerty D, Barbagallo M, Vellas B, Cha HB, Holmerova I, Dong B. IAGG/IAGG GARN International Survey of End-of-Life Care in Nursing Homes.
J Am Med Dir Assoc. 2017 Jun 1;18(6):465-469.
This study surveyed 18 long-term care experts from 15 countries in a two step process. Experts provided definitions of core concepts such as palliative care and hospice care and then provided their level of agreement to a series of statements about end of life care. Overall, the experts agreed that hospice and palliative care should be available in long term facilities. However there was substantial variation in the access to palliative care and the need for greater education and training was highlighted.
Froggatt K, Payne S, Morbey H, Edwards M, Finne-Soveri H, Gambassi G, et al. Palliative Care Development in European Care Homes and Nursing Homes: Application of a Typology of Implementation.
J Am Med Dir Assoc. 2017 Jun 1;18(6):550.e7-550.e14. doi: 10.1016/j.jamda.2017.02.016
Institutional long-term care for older people varies across Europe reflecting different models of health care delivery. This study undertook a mapping exercise in 29 European countries to identify how palliative care is being implemented into the care home setting. The researchers completed a descriptive and thematic analysis of the collected data and identified levels of implementation - macro at the policy level with legislative, financial and regulatory drivers, meso using education, tools, frameworks and research, and micro the actual delivery level. The authors concluded that implementation at the meso and micro levels is supported by macro-level engagement, but can happen with limited macro strategic drivers.
Cardona-Morrell M, Kim JCH, Brabrand M, Gallego-Luxan B, Hillman K. What is inappropriate hospital use for elderly people near the end of life? A systematic review.
Eur J Intern Med. 2017 May 11. pii: S0953-6205(17)30162-0. doi: 10.1016/j.ejim.2017.04.014. [Epub ahead of print]
This systematic review suggests that the definition of 'inappropriate admissions' near the end-of-life incorporates system factors, social and family factors. This makes it difficult to provide an accurate estimation of clinically inappropriate hospital use by older people.
Harrison JK, Reid J, Quinn TJ, Shenkin SD. Using quality assessment tools to critically appraise ageing research: a guide for clinicians.
Age Ageing. 2017 May;46:359-365. doi: 10.1093/ageing/afw223.
This article is a review of research methods. It aims to help aged care practitioners learn about the principles and processes associated with critical appraisal. A range of quality assessment tools are discussed and there is advice on when it is useful to use tools in appraisal.
Tait PA, Cheung WH, Wiese M, Staff K. Improving community access to terminal phase medicines in Australia: identification of the key considerations for the implementation of a core medicines list.
Aust J Prim Health. 2017 May 11. doi: 10.1071/PY16153.
Access to medicines to support people who are dying at home can be challenging. This study looked at the views of specialist and generalist health professionals around community access to terminal phase medicines. Six themes emerged from focus group discussions around accessing medicines for management of terminal phase symptoms. They were: Medication Supply; Education and Training; Caregiver Burden; Safety; Funding; and Clinical Governance.
Mitchell GK, Senior HE, Rhee JJ, Ware RS, Young S, Teo PC, et al. Using intuition or a formal palliative care needs assessment screening process in general practice to predict death within 12 months: A randomised controlled trial.
Palliat Med. 2017 Mar 1:269216317698621. doi: 10.1177/0269216317698621.
This study aimed to determine if screening for likely death within 12 months is more effective using screening tools or intuition. An RCT compared the Surprise Question with the SPICT against unguided intuition. The study showed that the screening tool was better at predicting actual death than intuition, but had a higher false positive rate.
Page updated 27 February 2019