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Education - Community, Family, Carers

What we know

Carers may be unprepared and unsupported in providing care for someone at the end of their life. When providing palliative care we need to provide the knowledge and information they need.  The family and the community more broadly may also need to learn about palliative care and death and dying.

Education can take many different forms and serve different purposes. Information needs to be trustworthy, accessible, relevant and presented in a way that it is easy to understand. Education for carers, family and the community has been shown to be of benefit.

What can I do?

Sometimes you will be educating patients, carers and their families as part of your usual care.

Use My Information Kit to assemble information to leave with someone or send.
Recommend trusted online resources such as Palliative Care Australia or CareSearch to families and carers.

Respite care may allow a carer or family member to attend an education or training session. In NSW, ambulance services can provide care to older people in a Residential Aged Care Facilities (620kb pdf) (RACF) who have an Authorised Adult Palliative Care Plan (113kb pdf).

 

 

What can I learn?

Become familiar with the Charter of Care Recipients' Rights and Responsibilities - Home Care and the Charter of Care Recipients' Rights and Responsibilities - Residential Care outlines the rights and responsibilities of acre recipients including national Aboriginal and Torres Strait Islander Flexible Aged Care services. These exist in 19 languages.
 

 

What can my organisation do?

Promote educational opportunities and resources:


Develop a kit of information for patients and carers.

Organisations can promote carer support services: Conduct education or training sessions. If offering education or training, consider things which may help carers to be able to attend:
  • Offer these in the home as part of community palliative care services
  • Ensure that access to the venue is easy and parking is free and freely available
  • Sessions can be offered in conjunction with an activity or a time when carers are likely to be at or close to the venue
  • Provide or arrange respite care so that the carer and/or family members are able to attend.

 

Page updated 25 May 2017