Carers are an integral part of Australia's health system and are the foundation of our aged, disability, palliative and community care systems. [10,11] Carers may be unprepared and significantly unsupported for the important contributions and demands required at the end of a person's life.  Palliative care provision needs to recognise and respond to carers’ needs.  The family and the community more broadly may also need information about palliative care and death and dying.
The following is a summary of the research which relates to information and education for patients, carers, family members and the general public about life-limiting illness and palliative care.
Education programs are diverse and can be categorised [4,5,13] as:
- Educational – information and accessing information or services
- Skill-building – learning skills of care
- Coping-enhancement – learning ways to manage the challenges of terminal illness.
Training and education programs described in the literature are distinct programs or a component of palliative care or end-of-life care. Information or training can be presented in a variety of formats and in a variety of settings [1-5,13,14] which can make evaluation and comparison difficult.
Carers may wish to participate in education or training sessions but may not be able to due to many reasons. [1,3] Home telehealth  and YouTube videos  might allow more carers to access training and education but these may not be a medium of choice for older people.
The included systematic reviews are of variable quality and include research of variable methodological design and rigour. Research in this area is growing in quality and quantity  but very little focuses its attention on palliative care for older people.
Page updated 10 September 2020